News that’s not good.

Rachel was evaluated in Houston at MD Anderson…top lymphoma hospital in the nation. The doc was ready and excited about calling together the research team to get her started on a trial drug.  The insurance company provided by MY place of work, also her mother’s place of work, a hospital, has refused to pay for the treatment.

Many other avenues are being investigated. People fighting for their children’s lives should not have to jump through these hoops. They are suffering enough.

I hate everything.


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16 Responses to News that’s not good.

  1. Crap. We went through this when the HMO neurologist and GP couldn’t figure out what was wrong with my husband, who was having trouble walking and had double vision. At one point he was undergoing treatment for myasthenia gravis, but it was painfully evident it wasn’t working, and we knew that wasn’t what he had. Then someone recommended a specialist from the University of Minnesota: but our HMO wouldn’t pay for it and told us we would have to pay out of pocket for it. $6000 later—we had to drain our savings to pay for the tests and examinations by the U’s specialist—the doctor discovered my husband had a small, flat tumor growing on his brain stem. There was nothing they could do for it, and we were stunned by the diagnosis, but it was better to know the truth than have our GP declare it was “stress” and my husband “just needed a vacation.”

    I don’t suppose Rachel’s mother has an ombudsman in her HR department who could help with this? Health insurance companies are absolute jerks when it comes to paying for “experimental treatments” and since they “own” the policies, there’s nothing the federal and state’s insurance regulators can do about it. Hiring an attorney and dealing with a lawsuit are the last things you want to do when you or a loved one is sick (and the insurance companies know this—they are evil): but it sometimes is the only way to get the treatment a person needs.

    It sometimes helps to contact one’s congressional representatives (if they’re not Republican) to see if they can do anything for Rachel. It works sometimes, other times not. Fighting and making calls help, if only because it makes a person feel less helpless. Fighting energy is being sent to Rachel and her mom right now!

  2. I’m so sorry….NO..this really sucks !!
    Have a fund raiser? I’ll help for sure…I would want help if that happened to Gabby!

  3. phantomxii says:

    Damn. This completely sucks. (Insert political diatribe about healthcare payment system here.)

  4. mariser says:

    several years ago SCOTUS ruled that if an insurance company denied to pay for a treatment and after court proceedings was found to be in the wrong, they could only be held liable for the treatment cost. no punitive damages.
    thus, it its very much to the insurance devils advantage to deny, deny, deny. at worst, they’ll be required to pay what they had to pay to begin with.

    our thoughts are with the indefatigable Rachel and her family. what HG said about an HR ombudsman is a good idea to begin with.

  5. Laurie says:

    Her mother should call a journalist. The journalist writes a story, people will donate. People are good that way.

    It’s not quite as bad news as there not being a treatment to try at all.

  6. madtante says:

    I’m so sorry. This is such shite. Most of Europe have had national health care since the 40s. The US set it up for them after WWII. Living in Europe, I saw it in action: it was FINE. No horror stories like you hear right-wing nutjobs talking about — they’ve obviously NEVER lived “under” universal health care or they’d STFU. Then, they always pull out a horror story, “My cousins SIL’s brother…” No. You can find a horror story ANYWHERE. I’ve lived under it and there are always ways to improve but under a system like that, she’d be treated (even if for experimental use).

    It’s more BS when nobody needs any BS.

  7. pyrit says:

    😦 I’m so sorry. Any way she and her family could move to Canada, Europe, So. America, Cuba? Seriously. Or almost any foreign country.

  8. ::flips off the insurance company::
    Good thoughts going to the family though. I hope something works out. VERY soon, at that

  9. robpixaday says:

    Horrifying… absolutely horrifying.

    Healthcare is a disaster. That’s it.
    I’m hoping for the best for all of you, though. And soon.

  10. CreakyGeek says:

    It’s not bad enough to be so sick, now she and you have to grapple with this bureaucratic nightmare on top of it?! Who can blame you for hating everything. I’m so sorry, on both/all counts.

  11. snoringKatZ says:

    I’ll have to talk to my friends. There are programs to get drugs for people. Insurance companies are there to protect their stockholders and no one else.

  12. geologywoman says:

    That is horrible! How shameful the insurance companies are. Shame, shame on them! If I were you I would write some emails/letters to some senators.

  13. Jaypo says:

    Sad and discouraging, larui, all my best intentions go out to her and her family. When I was out for a job related injury in 2004, the insurance company assigned me an “advocate” as a go-between, betw work and me, the employee. I wonder if there are health advocates available who might help somehow.

    This is a prime example of what’s so wrong about our system. Capitalism may be good for some things but when it overrides a greater good or concern for others, it becomes almost criminal.

  14. lauowolf says:

    this is simply unspeakable

  15. Redscylla says:

    I am so fucking tired of this bullshit. Nearly every politician in this country is holding its citizens hostage to the insurance industry. We need national healthcare now. No more crapola about insurance companies not covering necessary treatments.

    Contact a journalist or start an online donation pool, and let us know how we can help.

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